Research Readiness for Rare Diseases (Organized by the Patient Outreach Committee)

300 million dollars in federal funding to develop treatments for rare diseases

Rare Disease Research

Funding for Rare Disease Research Often From Non-Profit Organizations

Rare disease research

Rare Disease Fund has potential to help more patients: Rare Disorders Society

Rare Diseases: Small Numbers, Big Problem - Part 1

FDA Providing New Grants for Natural History Studies in Rare Diseases

Rare Research and Funding

Why I Got Involved with Rare Disease Research: Siddharth Srivastava, MD

Understanding Rare Disease – Together Caring for Rare Disease

Rare Diseases are Not Rare – A Training on Rare Disease Resources

Rare diseases research, challenges and firsthand accounts

Funding Research in Rare Genetic Diseases to Save Lives

Rare Disease Fund – Hope For A Lifetime

Advocate for Myotonic Dystrophy Research Funding - Rare Disease Day 2024

Lafora Disease Experts on Clinical Trials, Challenges Funding Rare Disease Research | VibeCast Ep 19

RARE Drug Development Symposium: Exploring the World of Funding Research

Breaking Down Barriers in Rare Disease Research: Advantages and Obstacles in Data Sharing

Rare Disease; Rarer Organization: How EB Research Partnership Drives Rare Disease Research